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Publication Details
AFRICAN RESEARCH NEXUS
SHINING A SPOTLIGHT ON AFRICAN RESEARCH
medicine
Which health-related quality of life aspects are important to patients with chronic myeloid leukemia receiving targeted therapies and to health care professionals?
Annals of Hematology, Volume 91, No. 9, Year 2012
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Description
The objective of this study was to investigate the health-related quality of life (HRQOL) aspects valued the most by patients with chronic myeloid leukemia (CML) receiving targeted therapies (TT), and to compare their perception with that of health-care professionals' (HCPs). Semi-structured interviews were conducted with 137 CML patients receiving TT from five different countries. An additional sample of 99 CML patients, completing an online interview, was considered for supportive analyses. A sample of 59 HCPs from 12 countries also participated in the study. Patients and HCPs were asked to rate and rank the importance of a predefined list of 74 HRQOL aspects of potential relevance for CML patients. Patients and HCPs agreed that the following five aspects are most important: fatigue, muscle cramps, swelling, worries, and uncertainty about health condition in the future, and importance of social support in coping with the disease. However, the difference in rankings between the two groups was substantial with respect to other HRQOL aspects investigated. Patients valued some issues related to symptoms much higher than HCPs, thus suggesting that a better symptom management could be the crucial aspects to improve HRQOL of CML patients.© 2012 Springer-Verlag.
Authors & Co-Authors
Efficace, Fabio
Italy, Rome
Gimema Data Center
Breccia, Massimo
Italy, Rome
Sapienza Università Di Roma
Saussele, Susanne
Germany, Heidelberg
Universität Heidelberg
Kossak-Roth, Ute
Germany, Heidelberg
Universität Heidelberg
Cardoni, Annarita
Italy, Rome
Gimema Data Center
Caocci, G.
Italy, Cagliari
Università Degli Studi Di Cagliari
Chie, Wei-Chu
Taiwan, Taipei
National Taiwan University
Naeem, Adel
Iraq, Baghdad
University of Baghdad
Nicolatou-Galitis, Ourania
Greece, Athens
Athens University Dental School
Cocks, Kim
United Kingdom, York
University of York
Vignetti, Marco
Italy, Rome
Gimema Data Center
Baccarani, Michele
Italy, Bologna
Irccs Azienda Ospedaliero-universitaria Di Bologna
Mandelli, Franco
Italy, Rome
Gimema Data Center
Sprangers, Mirjam A.G.
Netherlands, Amsterdam
Universiteit Van Amsterdam
Statistics
Citations: 14
Authors: 14
Affiliations: 10
Identifiers
Doi:
10.1007/s00277-012-1458-6
ISSN:
09395555
e-ISSN:
14320584
Research Areas
Disability