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Publication Details
AFRICAN RESEARCH NEXUS
SHINING A SPOTLIGHT ON AFRICAN RESEARCH
medicine
Quality of Life of Adults with Congenital Heart Disease in 15 Countries Evaluating Country-Specific Characteristics
Journal of the American College of Cardiology, Volume 67, No. 19, Year 2016
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Description
Background Measuring quality of life (QOL) is fundamental to understanding the impact of disease and treatment on patients' lives. Objectives This study aimed to explore QOL in an international sample of adults with congenital heart disease (CHD), the association between patient characteristics and QOL, and international variation in QOL and its relationship to country-specific characteristics. Methods We enrolled 4,028 adults with CHD from 15 countries. QOL was assessed using a linear analog scale (LAS) (0 to 100) and the Satisfaction with Life Scale (SWLS) (5 to 35). Patient characteristics included sex, age, marital status, educational level, employment status, CHD complexity, and patient-reported New York Heart Association (NYHA) functional class. Country-specific characteristics included general happiness and 6 cultural dimensions. Linear mixed models were applied. Results Median QOL was 80 on the LAS and 27 on the SWLS. Older age, lack of employment, no marriage history, and worse NYHA functional class were associated with lower QOL (p < 0.001). Patients from Australia had the highest QOL (LAS: 82) and patients from Japan the lowest (LAS: 72). Happiness scores and cultural dimensions were not associated with variation in QOL after adjustment for patient characteristics and explained only an additional 0.1% of the variance above and beyond patient characteristics (p = 0.56). Conclusions This large-scale, international study found that overall QOL in adults with CHD was generally good. Variation in QOL was related to patient characteristics but not country-specific characteristics. Hence, patients at risk for poorer QOL can be identified using uniform criteria. General principles for designing interventions to improve QOL can be developed. © 2016 American College of Cardiology Foundation.
Authors & Co-Authors
Apers, Silke
Belgium, Leuven
Ku Leuven
Kovacs, Adrienne H.
Canada, Toronto
Peter Munk Cardiac Centre
Luyckx, Koen
Belgium, Leuven
Ku Leuven
Thomet, Corina
Switzerland, Bern
University Hospital Bern
Budts, Werner I.H.L.
Belgium, Leuven
Ku Leuven
Enomoto, Junko
Japan, Chiba
Chiba Cardiovascular Center
Sluman, Maayke A.
Netherlands, Amsterdam
Amsterdam Umc - University of Amsterdam
Wang, Jou Kou
Taiwan, Taipei
National Taiwan University Hospital
Jackson, Jamie L.
United States, Columbus
Nationwide Children’s Hospital
Khairy Dr, Paul
Canada, Montreal
University of Montreal
Cook, Stephen C.
United States, Pittsburgh
Upmc Children’s Hospital of Pittsburgh
Chidambarathanu, Shanthi
Unknown Affiliation
Alday, Luis Eduardo
Argentina, Cordoba
Hospital de Niños
Eriksen, Katrine
Norway, Oslo
Oslo Universitetssykehus
Dellborg, Mikael
Sweden, Gothenburg
Göteborgs Universitet
Sweden, Gothenburg
Sahlgrenska Akademin
Berghammer, Malin C.
Sweden, Gothenburg
Göteborgs Universitet
Mattsson, Eva
Sweden, Stockholm
Karolinska Universitetssjukhuset
Mackie, Andrew S.
Canada, Edmonton
Stollery Children's Hospital
Menahem, Samuel A.
Australia, Clayton
Monash Health
Caruana, Maryanne
Malta, Valletta
Mater Dei Hospital
Veldtman, Gruschen R.
United States, Cincinnati
Cincinnati Children's Hospital Medical Center
Soufi, Alexandra
France, Lyon
Chu de Lyon
White, Kamila S.
United States, St. Louis
University of Missouri-st. Louis
Callus, Edward
Italy, San Donato Milanese
Gruppo Ospedaliero San Donato
Kutty, Shelby
United States, Omaha
University of Nebraska Medical Center
Fieuws, Steffen
Belgium, Hasselt
Universiteit Hasselt
Moons, Philip
Belgium, Leuven
Ku Leuven
Sweden, Gothenburg
Göteborgs Universitet
Statistics
Citations: 117
Authors: 27
Affiliations: 24
Identifiers
Doi:
10.1016/j.jacc.2016.03.477
ISSN:
07351097
Research Areas
Disability
Health System And Policy
Noncommunicable Diseases