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Publication Details
AFRICAN RESEARCH NEXUS
SHINING A SPOTLIGHT ON AFRICAN RESEARCH
medicine
Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors
International Journal of Cardiology, Volume 251, Year 2018
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Description
Aims Geographical differences in patient-reported outcomes (PROs) of adults with congenital heart disease (ConHD) have been observed, but are poorly understood. We aimed to: (1) investigate inter-country variation in PROs in adults with ConHD; (2) identify patient-related predictors of PROs; and (3) explore standard of living and healthcare system characteristics as predictors of PROs. Methods and results Assessment of Patterns of Patient-Reported Outcomes in Adults with Congenital Heart disease – International Study (APPROACH-IS) was a cross-sectional, observational study, in which 4028 patients from 15 countries in 5 continents were enrolled. Self-report questionnaires were administered: patient-reported health (12-item Short Form Health Survey; EuroQOL-5D Visual Analog Scale); psychological functioning (Hospital Anxiety and Depression Scale); health behaviors (Health Behavior Scale–Congenital Heart Disease) and quality of life (Linear Analog Scale for quality of life; Satisfaction With Life Scale). A composite PRO score was calculated. Standard of living was expressed as Gross Domestic Product per capita and Human Development Index. Healthcare systems were operationalized as the total health expenditure per capita and the overall health system performance. Substantial inter-country variation in PROs was observed, with Switzerland having the highest composite PRO score (81.0) and India the lowest (71.3). Functional class, age, and unemployment status were patient-related factors that independently and consistently predicted PROs. Standard of living and healthcare system characteristics predicted PROs above and beyond patient characteristics. Conclusions This international collaboration allowed us to determine that PROs in ConHD vary as a function of patient-related factors as well as the countries in which patients live. © 2017 Elsevier B.V.
Authors & Co-Authors
Moons, Philip
Belgium, Leuven
Ku Leuven
Sweden, Gothenburg
Göteborgs Universitet
Kovacs, Adrienne H.
Canada, Toronto
Peter Munk Cardiac Centre
United States, Portland
Oregon Health & Science University
Luyckx, Koen
Belgium, Leuven
Ku Leuven
Thomet, Corina
Switzerland, Bern
University of Bern
Budts, Werner I.H.L.
Belgium, Leuven
Ku Leuven– University Hospital Leuven
Belgium, Leuven
Ku Leuven
Enomoto, Junko
Japan, Chiba
Chiba Cardiovascular Center
Sluman, Maayke A.
Netherlands, Amsterdam
Amsterdam Umc - University of Amsterdam
Yang, Hsiao-Ling
Taiwan, Taipei
National Taiwan University
Jackson, Jamie L.
United States, Columbus
Nationwide Children’s Hospital
Khairy Dr, Paul
Canada, Montreal
University of Montreal
Cook, Stephen C.
United States, Grand Rapids
Helen Devos Children's Hospital
Subramanyan, Raghavan
India, Chennai
Frontier Lifeline Hospital Dr. K. M. Cherian Heart Foundation
Alday, Luis Eduardo
Argentina, Cordoba
Hospital de Niños
Eriksen, Katrine
Norway, Oslo
Rikshospitalet-radiumhospitalet hf
Dellborg, Mikael
Sweden, Gothenburg
Göteborgs Universitet
Sweden, Gothenburg
Sahlgrenska Universitetssjukhuset
Berghammer, Malin C.
Sweden, Gothenburg
Göteborgs Universitet
Sweden, Trollhattan
Högskolan Väst
Johansson, Bengt Erik
Sweden, Umea
Umeå Universitet
Mackie, Andrew S.
Canada, Edmonton
Stollery Children's Hospital
Menahem, Samuel A.
Australia, Clayton
Monash Health
Caruana, Maryanne
Malta, Valletta
Mater Dei Hospital
Veldtman, Gruschen R.
United States, Cincinnati
Cincinnati Children's Hospital Medical Center
Soufi, Alexandra
France, Lyon
Chu de Lyon
Fernandes, Susan M.
United States, Stanford
Stanford Healthcare
White, Kamila S.
United States, St. Louis
University of Missouri-st. Louis
Callus, Edward
Italy, San Donato Milanese
Gruppo Ospedaliero San Donato
Kutty, Shelby
United States, Omaha
University of Nebraska Medical Center
van Bulck, Liesbet V.
Belgium, Leuven
Ku Leuven
Apers, Silke
Belgium, Leuven
Ku Leuven
Statistics
Citations: 50
Authors: 28
Affiliations: 27
Identifiers
Doi:
10.1016/j.ijcard.2017.10.064
ISSN:
01675273
Research Areas
Disability
Health System And Policy
Mental Health
Noncommunicable Diseases
Study Design
Cross Sectional Study
Study Approach
Quantitative