Establishing a computerized tumor registry: The Eastern Province experience

Background: Programs for effective cancer care include facilities for cancer research, prevention and treatment as well as a regional or national cancer registry. The Computerized Tumor Registry Project at King Faisal University is the first attempt to establish a population-based Tumor Registry at a regional level in the Kingdom of Saudi Arabia (KSA). Objectives: This paper discusses the steps taken to set up the registry and analyzes the achievements and obstacles. Methods: Developing the registry required project manpower, computer software and other non-human resources including procedure and system manuals, data entry and follow-up formats, as well as reportable lists, confidentiality code, legislation, data collection procedures, a way to estimate the population of the Eastern Province and quality control measures. Results: The project achievements and major obstacles were outlined. Recommendations: Measures to ensure completeness of the registration, updating the census and improving quality control were recommended. Computerized tumor registry, Eastern Province, Saudi Arabia.