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Publication Details
AFRICAN RESEARCH NEXUS
SHINING A SPOTLIGHT ON AFRICAN RESEARCH
medicine
Enhancing patient-reported outcome measurement in research and practice of palliative and end-of-life care
Supportive Care in Cancer, Volume 20, No. 7, Year 2012
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Description
Purpose Patient-reported outcome measurement (PROM) plays an increasing role in palliative and end-of-life (EOL) care but their use in EOL care and research remains varied and inconsistent. We aimed to facilitate pan-European collaboration to improve PROMs in palliative and EOL care and research. Methods The study includes a workshop with experts experienced in using PROMs in clinical care and research from Europe, North America, and Africa. Information from presentations, and plenary and group discussions was analysed using content analysis for extracting the main themes. Results Thirty-two professionals from 15 countries and eight different professional backgrounds participated in the workshop. The discussion identified: 1) the need for standardization with improvement of existing PROMs, e.g., with a modular system and an optional item pool; 2) the aspects of further development with a multi-professional approach taking into account cultural sensitivity especially for translated versions; and 3) the need for guidance, training, and resources. An international network for sharing concepts, experiences, and solutions could enhance these steps of further development. Conclusion PROMs must be based on rigorous scientific methods and respond to patient complexity. Coordinated pan-European collaboration including researchers and clinicians is required to develop and attain quality care and systematic research in outcome measurement in palliative and EOL care. © 2011 Springer-Verlag.
Authors & Co-Authors
Simon, Steffen T.
United Kingdom, London
King's College London
Germany, Koln
Medizinische Fakultät
Higginson, Irene J.
United Kingdom, London
King's College London
Harding, Richard
United Kingdom, London
King's College London
Daveson, Barbara A.
United Kingdom, London
King's College London
Gysels, Marjolein H.
Spain, Barcelona
Fundació Clínic Per a la Recerca Biomèdica
Deliens, Luc H.J.
Belgium, Brussels
Vrije Universiteit Brussel
Netherlands, Amsterdam
Amsterdam Umc - Vrije Universiteit Amsterdam
Echteld, Michael A.
Netherlands, Amsterdam
Amsterdam Umc - Vrije Universiteit Amsterdam
Radbruch, Lukas
Germany, Bonn
Universität Bonn
Toscani, Franco
Italy, Cremona
Istituto Di Ricerca in Medicina Palliativa
Krzyzanowski, Dominik M.
Poland, Wroclaw
Wroclaw Medical University
Costantini, Massimo
Italy, Genoa
Irccs San Martino Polyclinic Hospital
Downing, Julia D.
Uganda, Kampala
African Palliative Care Association
Ferreira, Pedro L.
Portugal, Coimbra
Universidade de Coimbra, Centro de Estudos e Investigação em Saúde
Benalia, Hamid
United Kingdom, London
King's College London
Bausewein, Claudia
United Kingdom, London
King's College London
Statistics
Citations: 33
Authors: 15
Affiliations: 11
Identifiers
Doi:
10.1007/s00520-012-1436-5
ISSN:
09414355
e-ISSN:
14337339
Research Areas
Health System And Policy
Study Approach
Qualitative