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Publication Details
AFRICAN RESEARCH NEXUS
SHINING A SPOTLIGHT ON AFRICAN RESEARCH
medicine
Community engagement and informed consent in the international HapMap project
Community Genetics, Volume 10, No. 3, Year 2007
Notification
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Description
The International HapMap Consortium has developed the HapMap, a resource that describes the common patterns of human genetic variation (haplotypes). Processes of community/public consultation and individual informed consent were implemented in each locality where samples were collected to understand and attempt to address both individual and group concerns. Perceptions about the research varied, but we detected no critical opposition to the research. Incorporating community input and responding to concerns raised was challenging. However, the experience suggests that approaching genetic variation research in a spirit of openness can help investigators better appreciate the views of the communities whose samples they seek to study and help communities become more engaged in the science. Copyright © 2007 S. Karger AG.
Authors & Co-Authors
Rotimi, Charles N.
United States, Washington, D.c.
Howard University College of Medicine
Leppert, Mark F.
United States, Salt Lake City
The University of Utah
Matsuda, Ichirou
Japan, Ishikari District
Health Sciences University of Hokkaido
Zeng, Changqing
China, Beijing
Chinese Academy of Sciences
Zhang, Houcan
China, Beijing
Beijing Normal University
Adebamowo, Clement
Nigeria, Ibadan
College of Medicine, University of Ibadan
Ajayi, I. O.
Nigeria, Ibadan
College of Medicine, University of Ibadan
Aniagwu, Toyin I.G.
Nigeria, Ibadan
College of Medicine, University of Ibadan
Dixon, Missy
United States, Salt Lake City
The University of Utah
Fukushima, Yoshimitsu
Japan, Matsumoto
Shinshu University Faculty of Medicine
Macer, Darryl R.J.
Thailand, Bangkok
Scientific and Cultural Organization Bangkok
Marshall, Patricia A.
United States, Cleveland
Case School of Medicine
Nkwodimmah, Chibuzor
Nigeria, Ibadan
College of Medicine, University of Ibadan
Peiffer, Andy P.
United States, Salt Lake City
The University of Utah
Royal, Charmaine D.M.
United States, Washington, D.c.
Howard University College of Medicine
Suda, Eiko
Japan, Tsukuba
University of Tsukuba
Zhao, Hui
China, Beijing
Chinese Academy of Sciences
Wang, Vivian Ota
United States, Bethesda
National Human Genome Research Institute Nhgri
McEwen, Jean E.
United States, Bethesda
National Human Genome Research Institute Nhgri
Statistics
Citations: 74
Authors: 19
Affiliations: 11
Identifiers
Doi:
10.1159/000101761
ISSN:
14222795
Research Areas
Genetics And Genomics