Skip to content
Home
About Us
Resources
Profiles Metrics
Authors Directory
Institutions Directory
Top Authors
Top Institutions
Top Sponsors
AI Digest
Contact Us
Menu
Home
About Us
Resources
Profiles Metrics
Authors Directory
Institutions Directory
Top Authors
Top Institutions
Top Sponsors
AI Digest
Contact Us
Home
About Us
Resources
Profiles Metrics
Authors Directory
Institutions Directory
Top Authors
Top Institutions
Top Sponsors
AI Digest
Contact Us
Menu
Home
About Us
Resources
Profiles Metrics
Authors Directory
Institutions Directory
Top Authors
Top Institutions
Top Sponsors
AI Digest
Contact Us
Publication Details
AFRICAN RESEARCH NEXUS
SHINING A SPOTLIGHT ON AFRICAN RESEARCH
medicine
How to implement medical and patient associations in low-income countries: A proposition from the African French Alliance for the Treatment of Haemophilia (AFATH)
Haemophilia, Volume 27, No. 2, Year 2021
Notification
URL copied to clipboard!
Description
Introduction: There is a lack of joint recommendations by healthcare professionals (HCP) and patient organizations when a partnership between high and low-income countries in the field of haemophilia is planned. Aim: To draft recommendations to clarify the methodology when a partnership between low- and high-income countries is planned with the objective of a long-term implication. This methodology is to be implemented for fulfilling both medical and associative aims. Methods: Based on the available literature, a first document was written, then diffused to AFATH (Alliance Franco-Africaine pour le Traitement de l’Hémophilie) members, and after a one-day meeting and further amendments, a second draft was approved by all members before submission for publication. Results: Based on 6 years experience, several recommendations regarding the joint and separate roles of patient association and HCP for a first mission in French-speaking sub-Saharan African countries have been established. The proposed methodology for establishing preliminary contacts, the first visit and the key points for diagnostic action, medical follow-up, patient education and advocacy strategy outlines a model of partnership between patients and HCP. Conclusion: This paper written jointly by patients and physicians underlines the importance of reciprocal expert guidance and a partnership based on complementary inputs. © 2021 John Wiley & Sons Ltd
Authors & Co-Authors
Sannié, Thomas
Unknown Affiliation
de Moerloose, Philippe
Switzerland, Geneva
Université de Genève Faculté de Médecine
Anani, Ludovic Y.
Unknown Affiliation
Baglo, Tatiana Priscilla
Unknown Affiliation
Bollahi, Mohamed Abdallahi
Unknown Affiliation
Chami, Irene
Unknown Affiliation
Diop, Saliou N.
Unknown Affiliation
Elira-Dokekias, Alexis
Unknown Affiliation
Fashaho, Aloys
Unknown Affiliation
Fondanesche, Christian
Unknown Affiliation
Gruel, Yves
Unknown Affiliation
Gris, Jean Christophe R.
Unknown Affiliation
Haffar, Assad
Unknown Affiliation
Kafando, Eléonore
Unknown Affiliation
Mekhuzla, Salomé
Unknown Affiliation
Nébié, Yacouba Koumpingnin
Unknown Affiliation
Pouplard, Claire
Unknown Affiliation
Rakoto, Olivat Alson Aimée
Unknown Affiliation
Schved, Jean François
Unknown Affiliation
Sy-Bah, Diariatou
Unknown Affiliation
Toulon, Pierre
Unknown Affiliation
Trossaërt, Marc
Unknown Affiliation
Weill, Alain
Unknown Affiliation
Zein, Ekhtel Elbenina
Unknown Affiliation
Zohoun, Alban Gildas Comlan
Unknown Affiliation
Statistics
Citations: 1
Authors: 25
Affiliations: 1
Identifiers
Doi:
10.1111/hae.14269
ISSN:
13518216
Research Areas
Health System And Policy
Study Design
Cohort Study