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Publication Details
AFRICAN RESEARCH NEXUS
SHINING A SPOTLIGHT ON AFRICAN RESEARCH
MindKind: A mixed-methods protocol for the feasibility of global digital mental health studies in young people
Wellcome Open Research, Volume 6, Article 275, Year 2022
Notification
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Description
Background: While an estimated 14-20% of young adults experience mental health conditions worldwide, the best strategies for prevention and management are not fully understood. The ubiquity of smartphone use among young people makes them excellent candidates for collecting data about lived experiences and their relationships to mental health. However, not much is known about the factors affecting young peoples' willingness to share information about their mental health. Objective: We aim to understand the data governance and engagement strategies influencing young peoples' (aged 16-24) participation in app-based studies of mental health. We hypothesize that willingness to participate in research is influenced by involvement in how their data is collected, shared, and used. Methods: Here, we describe the MindKind Study, which employs mixed methods to understand the feasibility of global, smartphone-based studies of youth mental health. A pilot 12-week app-based substudy will query participants' willingness to engage with remote mental health studies. Participants will be randomized into one of four different data governance models designed to understand their preferences, as well as the acceptability of models that allow them more or less control over how their data are accessed and used. Enrolees will receive one of two different engagement strategies. A companion qualitative study will employ a deliberative democracy approach to examine the preferences, concerns and expectations of young people, with respect to remote mental health research. We also detail our engagement with young people as co-researchers in this study. This pilot study is being conducted in India, South Africa and the United Kingdom. Conclusions: This study is expected to generate new insights into the feasibility of, and best practices for, remote smartphone-based studies of mental health in youth and represents an important step toward understanding which approaches could help people better manage their mental health. © 2022 The MindKind Consortium.
Authors & Co-Authors
Adeyemi, Faith Oluwasemilore
United Kingdom, Cambridge
University of Cambridge
United Kingdom, Bath
University of Bath
Areán, Patricia A.
United States, Seattle
University of Washington
Bampton, Emily
United Kingdom, Oxford
University of Oxford
Bradic, Ljubomir
United States, Seattle
Sage Bionetworks
Burn, A. M.
United Kingdom, Cambridge
University of Cambridge
Carey, Emma Grace
United Kingdom, Cambridge
University of Cambridge
Carlson, Sonia P.
United States, Seattle
Sage Bionetworks
Collins, Pamela Y.
United States, Seattle
University of Washington
Concepcion, Tessa L.
United States, Seattle
University of Washington
Damji, Meera
India, Pune
Indian Law Society
Doerr, Megan J.
United States, Seattle
Sage Bionetworks
Dunbar, Julia C.
United States, Seattle
Sage Bionetworks
Fazel, Mina S.
United Kingdom, Oxford
University of Oxford
United Kingdom, Oxford
Oxford University Hospitals Nhs Foundation Trust
Fernandes, Blossom
United Kingdom, Oxford
University of Oxford
Finchilescu, Gillian
South Africa, Johannesburg
University of the Witwatersrand
Ford, Tamsin Jane
United Kingdom, Cambridge
University of Cambridge
United Kingdom, Cambridge
Cambridgeshire and Peterborough Nhs Foundation Trust
F̀reeman, Melvyn Colin
South Africa, Pretoria
Wellness
South Africa, Stellenbosch
Stellenbosch University
Kalha, Jasmine
India, Pune
Indian Law Society
Karani, Minal
India, Pune
Indian Law Society
Kellen, Michael R.
United States, Seattle
Sage Bionetworks
Kemp, Christopher G.
United States, Baltimore
Johns Hopkins University
Lindani, Simthembile
South Africa
Walter Sisulu University
Mangravite, Lara M.
United States, Seattle
Sage Bionetworks
Marten, Carly
United States, Seattle
Sage Bionetworks
Mata-Greve, Felicia
United States, Seattle
University of Washington
Moore, Emily
United States, Seattle
Sage Bionetworks
Mounts, Erin
United States, Seattle
Sage Bionetworks
Neelakantan, Lakshmi
United Kingdom, Oxford
University of Oxford
Omberg, Larsson
United States, Seattle
Sage Bionetworks
Pasquale, Lisa
United States, Seattle
Sage Bionetworks
Pathare, Soumitra R.
India, Pune
Indian Law Society
Ranganathan, Swetha
India, Pune
Indian Law Society
Sams, Nichole
United States, Seattle
University of Washington
Scanlan, Erin Joy
United States, Seattle
Sage Bionetworks
Shah, Himani
India, Pune
Indian Law Society
Short, Sotirios
South Africa, Pretoria
Wellness
Sibisi, Refiloe
South Africa, Pretoria
Wellness
Sieberts, Solveig K.
United States, Seattle
Sage Bionetworks
Simon, Stockard
United States, Seattle
Sage Bionetworks
Sumant, Sushmita
India, Pune
Indian Law Society
Suver, Christine M.
United States, Seattle
Sage Bionetworks
van Vught, Chandre
South Africa, Pretoria
Wellness
Velloza, Jennifer
United States, Seattle
University of Washington
Zingela, Zukiswa
South Africa, Gqeberha
Nelson Mandela University
Statistics
Citations: 3
Authors: 44
Affiliations: 14
Identifiers
Doi:
10.12688/wellcomeopenres.17167.2
ISSN:
2398502X
Research Areas
Health System And Policy
Mental Health
Study Design
Phenomenological Study
Study Approach
Qualitative
Mixed-methods
Study Locations
South Africa