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Publication Details
AFRICAN RESEARCH NEXUS
SHINING A SPOTLIGHT ON AFRICAN RESEARCH
medicine
Community perspectives on care options for HIV prevention trial participants
AIDS Care - Psychological and Socio-Medical Aspects of AIDS/HIV, Volume 19, No. 4, Year 2007
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Description
There is on-going global debate and policy-setting concerning researchers' obligations to meet the health needs of people participating in HIV prevention trials in resource-poor settings. The perspectives of local community stakeholders on this issue are poorly understood as most of what is presented on behalf of communities where research takes place is anecdotal commentary. Using qualitative methods (130 in-depth interviews and 20 focus groups) we assessed perceived fairness of different strategies to meet the health needs of women who become HIV-infected during a hypothetical vaginal microbicide trial. Respondents included HIV prevention research participants, community stakeholders and health-care service providers in ten sites in seven countries (South Africa, Malawi, Tanzania, Zimbabwe, Zambia, India, US). Many respondents perceived referrals to be a potentially fair way to address care and treatment needs but concerns were also voiced about the adequacy of local health-care options and the ability of trial participants to access options. Most respondents viewed the provision of antiretroviral treatment by researchers to HIV-infected trial participants as unfair if treatment was not sustained beyond the end of the trial. The results underscore the importance of effectively linking trial participants to sustainable, community-based treatment and care. © 2007 Taylor & Francis.
Authors & Co-Authors
MacQueen, Kathleen M.
United States, Durham
Fhi 360
Namey, Emily E.
United States, Durham
Fhi 360
Chilongozi, David A.T.
Malawi, Lilongwe
Unc Project-malawi
Mtweve, Sabina P.
Tanzania, Moshi
Kilimanjaro Christian Medical Centre
Mlingo, Margaret
Zimbabwe, Harare
University of Zimbabwe
Morar, Neetha Shagan
South Africa, Tygerberg
South African Medical Research Council
Reid, Cheri A.
United States, Birmingham
The University of Alabama at Birmingham
Ristow, A.
Malawi, Blantyre
Johns Hopkins Project
Sahay, Seema
India, Pune
National Aids Research Institute India
Statistics
Citations: 25
Authors: 9
Affiliations: 8
Identifiers
Doi:
10.1080/09540120601035284
ISSN:
09540121
e-ISSN:
13600451
Research Areas
Health System And Policy
Infectious Diseases
Study Approach
Qualitative
Study Locations
Malawi
South Africa
Tanzania
Zambia
Zimbabwe
Participants Gender
Female